databases > DOI:10.25504/FAIRsharing.clSFul

ready Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database

Abbreviation:SECURE-DERM

General Information
Given the interest in the emerging and evolving coronavirus (COVID-19) pandemic and the questions regarding how this will impact patients with atopic dermatitis (AD) or alopecia who are treated with or without systemic immunomodulating medication, we have created a number of secure, online, de-identified Personal Health Identifier (PHI) – free reporting registries and an anonymous patient reported survey.




How to cite this record FAIRsharing.org: SECURE-DERM; Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database; DOI: https://doi.org/10.25504/FAIRsharing.clSFul; Last edited: May 6, 2021, 1:44 p.m.; Last accessed: May 07 2021 10:17 a.m.


Record added: Feb. 16, 2021, 9:26 a.m.
Record updated: April 28, 2021, 9:35 p.m. by The FAIRsharing Team.

Show edit history



Support

General

Additional Information


Tools

    No tools defined


Access / Retrieve Data

Conditions of Use

Applies to: Data use

Data Curation

Data Access




Publications

Global reporting of cases of COVID-19 in psoriasis and atopic dermatitis: an opportunity to inform care during a pandemic.

Mahil SK,Yiu ZZN,Mason KJ,Dand N,Coker B,Wall D,Fletcher G,Bosma A,Capon F,Iversen L,Langan SM,Di Meglio P,Musters AH,Prieto-Merino D,Tsakok T,Warren RB,Flohr C,Spuls PI,Griffiths CEM,Barker J,Irvine AD,Smith CH
Br J Dermatol 2020

View Paper (PubMed) View Publication

International collaboration and rapid harmonization across dermatologic COVID-19 registries.

Freeman EE,McMahon DE,HruzaGJ,IrvineAD,SpulsPI,SmithCH,MahilSK,Castelo-SoccioL,CordoroKM,Lara-CorralesI,NaikHB,AlhusayenR,IngramJR,FeldmanSR,Balogh EA,Kappelman MD,Wall D,Meah N,Sinclair R,Beylot-Barry M,Fitzgerald M,French LE,Lim HW,Griffiths CEM,Flohr C
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

Related Standards

Reporting Guidelines

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined

Metrics

No metrics standards defined


Related Databases

No related databases defined


Implementing Policies

This record is not implemented by any policy.


Credit

Record Maintainer

  • This record is in need of a maintainer. If you login, you'll be able to claim this record.

Funds

Grant Number(s)

  • RCN 20205667 (National and International Skin Registry Solutions (NISR), Dublin, Ireland )