databases > DOI:10.25504/FAIRsharing.tje0nv
Update in progress: note to all users. FAIRsharing is always available for you to search and discover databases, standards and data policies. However, for producers of these resources who maintain or wish to add new records, please note that editing is disabled until September while we migrate our data to our new, improved system. Read our blog post or get in touch with us for more details.
21/09/21 Ongoing Network Maintenance: From the 21st of September FAIRsharing may be offline at various point during the day; we apologise for any inconvenience.

ready The ITHANET Portal


General Information
The ITHANET Portal represents an expanding resource for clinicians and researchers dealing with haemoglobinopathies and a port of call for patients in search of professional advice. The ITHANET Portal integrates information on news, events, clinical trials and thalassaemia-related organisations, research projects and other scientific networks, wiki-based content of protocols, clinical guidelines and educational articles. Most importantly, disease-specific databases are developed and maintained on the ITHANET Portal, such as databases of haemoglobin variations (IthaGenes), epidemiology (IthaMaps) and HbF inducers (IthaDrugs).

How to cite this record ITHANET; The ITHANET Portal; DOI:; Last edited: Jan. 8, 2019, 1:22 p.m.; Last accessed: Sep 27 2021 5:33 a.m.

This record is maintained by ITHANET  (kountour)  ORCID

Record added: May 19, 2016, 9:21 a.m.
Record updated: Nov. 21, 2018, 11:17 a.m. by The FAIRsharing Team.

Show edit history

In Collections


    No tools defined

Access / Retrieve Data

Conditions of Use


IthaGenes: an interactive database for haemoglobin variations and epidemiology.

Kountouris P, Lederer CW, Fanis P, Feleki X, Old J, Kleanthous M
PLoS One 2014

View Paper (PubMed) View Publication

An electronic infrastructure for research and treatment of the thalassemias and other hemoglobinopathies: the Euro-mediterranean ITHANET project.

Lederer CW, Basak AN, Aydinok Y, Christou S, El-Beshlawy A, Eleftheriou A, Fattoum S, Felice AE, Fibach E, Galanello R, Gambari R, Gavrila L, Giordano PC, Grosveld F, Hassapopoulou H, Hladka E, Kanavakis E, Locatelli F, Old J, Patrinos GP, Romeo G, Taher A, Traeger-Synodinos J, Vassiliou P, Villegas A, Voskaridou E, Wajcman H, Zafeiropoulos A, Kleanthous M
Hemoglobin 2009

View Paper (PubMed) View Publication

Related Standards

Reporting Guidelines

No guidelines defined

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined


No metrics standards defined

Related Databases

No related databases defined

Implementing Policies

This record is not implemented by any policy.


Record Maintainer


Grant Number(s)

  • 306201 (European Commission under FP7 Grant Agreement)