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COVID-19 Dermatology registry

General Information

COVID-19 Dermatology registry aims at collect cases of COVID-19 cutaneous manifestations. The registry is open to medical professionals only, from any specialty.

Homepage https://www.aad.org/member/practice/coronavirus/registry

Countries that developed this resource United States

Created in 2020

Taxonomic range

Homo sapiens

SARS-CoV-2

Knowledge Domains

Subjects

User-defined Tags

How to cite this record FAIRsharing.org: COVID-19 Dermatology registry; COVID-19 Dermatology registry; DOI: https://doi.org/10.25504/FAIRsharing.Qyq85j; Last edited: May 20, 2021, 1:43 p.m.; Last accessed: Nov 28 2021 2:15 a.m.

Record added: Dec. 10, 2020, 5:59 p.m.
Record updated: May 13, 2021, 2:39 p.m. by The FAIRsharing Team.

Show edit history

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 14:39, 13 May 2021 (approved):

	'supportLinks' has been modified:
		Before:
			FAQ|https://assets.ctfassets.net/1ny4yoiyrqia/1kPU07pTmgxeg3WT9LwDS9/7c71bce01a4601f33670855f09b36dcc/COVID-19_Registry_FAQs.pdf
			online documentation|https://assets.ctfassets.net/1ny4yoiyrqia/5CPv8kDhxloD8dlhwS7y13/319859597f09b7eab4fe132bc6771a6d/COVID_Registry_Participants.pdf
		After:
			FAQ|https://assets.ctfassets.net/1ny4yoiyrqia/1kPU07pTmgxeg3WT9LwDS9/7c71bce01a4601f33670855f09b36dcc/COVID-19_Registry_FAQs.pdf
			online documentation|https://assets.ctfassets.net/1ny4yoiyrqia/5CPv8kDhxloD8dlhwS7y13/319859597f09b7eab4fe132bc6771a6d/COVID_Registry_Participants.pdf
			online documentation|https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		Added:
			online documentation|https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		Removed:

	'dataProcesses' has been modified:
		Before:
			Access upon request, data access, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
			Report a case (REDCap), data curation, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		After:
			Access upon request, data access, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		Added:
		Removed:
			Report a case (REDCap), data curation, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 16:15, 07 May 2021 (approved):

	'organizations' has been modified:
		Before:
			American Academy of Dermatology, Rosemont, IL, United States|https://www.aad.org/|Maintains
		After:
			American Academy of Dermatology, Rosemont, IL, United States|https://www.aad.org/|Maintains
			Massachusetts General Hospital, Boston, MA, USA|https://www.massgeneral.org/|Maintains
			International League of Dermatological Societies (ILDS)|https://ilds.org/covid-19/|Undefined
		Added:
			Massachusetts General Hospital, Boston, MA, USA|https://www.massgeneral.org/|Maintains
			International League of Dermatological Societies (ILDS)|https://ilds.org/covid-19/|Undefined
		Removed:

	'onto_disciplines' has been modified:
		Before:
			Clinical Studies
			Dermatology
			Health Science
			Infectious Disease Medicine
			Medical Virology
			Medicine
		After:
			Clinical Studies
			Dermatology
			Epidemiology
			Health Science
			Infectious Disease Medicine
			Medical Virology
			Medicine
		Added:
			Epidemiology
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 14:42, 16 Dec 2020 (approved):

	'dataProcesses' has been modified:
		Before:
			Access upon request, data access, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		After:
			Access upon request, data access, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
			Report a case (REDCap), data curation, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		Added:
			Report a case (REDCap), data curation, https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 13:41, 16 Dec 2020 (approved):

	'user_defined_tags' has been modified:
		Before:
			COVID-19
			Survey
			registry
		After:
			COVID-19
			Observations
			Survey
			registry
		Added:
			Observations
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 11:57, 16 Dec 2020 (approved):

	'publications' has been modified:
		Before:
			The spectrum of COVID-19-associated dermatologic manifestations: An international registry of 716 patients from 31 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Desai SR,Harp J,Takeshita J,French LE,Lim HW,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
		After:
			The spectrum of COVID-19-associated dermatologic manifestations: An international registry of 716 patients from 31 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Desai SR,Harp J,Takeshita J,French LE,Lim HW,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
			International collaboration and rapid harmonization across dermatologic COVID-19 registries.|Freeman et al.|J Am Acad Dermatol|2020
			Pernio-like skin lesions associated with COVID-19: A case series of 318 patients from 8 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Takeshita J,French LE,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
			The American Academy of Dermatology COVID-19 registry: Crowdsourcing dermatology in the age of COVID-19.|Freeman EE,McMahon DE,Fitzgerald ME,Fox LP,Rosenbach M,Takeshita J,French LE,Thiers BH,Hruza GJ|J Am Acad Dermatol|2020
		Added:
			International collaboration and rapid harmonization across dermatologic COVID-19 registries.|Freeman et al.|J Am Acad Dermatol|2020
			Pernio-like skin lesions associated with COVID-19: A case series of 318 patients from 8 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Takeshita J,French LE,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
			The American Academy of Dermatology COVID-19 registry: Crowdsourcing dermatology in the age of COVID-19.|Freeman EE,McMahon DE,Fitzgerald ME,Fox LP,Rosenbach M,Takeshita J,French LE,Thiers BH,Hruza GJ|J Am Acad Dermatol|2020
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 11:46, 16 Dec 2020 (approved):

	'user_defined_tags' has been modified:
		Before:
			COVID-19
		After:
			COVID-19
			Survey
			registry
		Added:
			Survey
			registry
		Removed:

	'yearOfCreation' has been modified:
		Before: 2019
		After: 2020

	'onto_disciplines' has been modified:
		Before:
			Clinical Studies
			Dermatology
			Health Science
			Medicine
			Virology
		After:
			Clinical Studies
			Dermatology
			Health Science
			Infectious Disease Medicine
			Medical Virology
			Medicine
		Added:
			Infectious Disease Medicine
			Medical Virology
		Removed:
			Virology

	'onto_domains' has been modified:
		Before:
		After:
			Patient Care
		Added:
			Patient Care
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.Qyq85j' by 'The FAIRsharing Team' at 09:49, 11 Dec 2020 (approved):

	'publications' has been modified:
		Before:
		After:
			The spectrum of COVID-19-associated dermatologic manifestations: An international registry of 716 patients from 31 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Desai SR,Harp J,Takeshita J,French LE,Lim HW,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
		Added:
			The spectrum of COVID-19-associated dermatologic manifestations: An international registry of 716 patients from 31 countries.|Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Desai SR,Harp J,Takeshita J,French LE,Lim HW,Thiers BH,Hruza GJ,Fox LP|J Am Acad Dermatol|2020
		Removed:

In Collections

TDR COVID-19 Participant-level data sharing platforms & registries

COVID-19 Resources

Support

General

FAQ	https://assets.ctfassets.net/1ny4yoiyrqi ...
online documentation	COVID Registry Leadership
online documentation	Report a case (REDCap)

Additional Information

Contact

General contact

Tools

No tools defined

Access / Retrieve Data

Conditions of Use

Data Access

Access upon request

https://redcap.partners.org/redcap/surveys/index.php?s=YJWAJCX7TY

Publications

The spectrum of COVID-19-associated dermatologic manifestations: An international registry of 716 patients from 31 countries.

Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Desai SR,Harp J,Takeshita J,French LE,Lim HW,Thiers BH,Hruza GJ,Fox LP
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

International collaboration and rapid harmonization across dermatologic COVID-19 registries.

Freeman et al.
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

Pernio-like skin lesions associated with COVID-19: A case series of 318 patients from 8 countries.

Freeman EE,McMahon DE,Lipoff JB,Rosenbach M,Kovarik C,Takeshita J,French LE,Thiers BH,Hruza GJ,Fox LP
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

The American Academy of Dermatology COVID-19 registry: Crowdsourcing dermatology in the age of COVID-19.

Freeman EE,McMahon DE,Fitzgerald ME,Fox LP,Rosenbach M,Takeshita J,French LE,Thiers BH,Hruza GJ
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

Related Standards

Reporting Guidelines

No guidelines defined

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined

Metrics

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Related Databases

No related databases defined

Implementing Policies

This record is not implemented by any policy.

Credit

Record Maintainer

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Maintains

American Academy of Dermatology, Rosemont, IL, United States (Consortium)
Massachusetts General Hospital, Boston, MA, USA (Government body)

Undefined

International League of Dermatological Societies (ILDS) (Consortium)

COVID-19 Dermatology registry

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