databases > bsg-d001804

ready SECURE-Sickle Cell Disease Registry

Abbreviation:Secure-SCD Registry

General Information
This registry is designed to capture pediatric and adult COVID-19 cases that are occurring across the world in patients living with sickle cell disease. The goal of the registry is to report on outcomes of cases of COVID-19 in this population of patients.

Homepage https://covidsicklecell.org/

Countries that developed this resource United States

Created in 2020





Awaiting DOI assignment.


Record added: Feb. 12, 2021, 9:36 a.m.
Record updated: Feb. 12, 2021, 9:36 a.m. by The FAIRsharing Team.



In Collections
COVID-19 Resources

Support

General

FAQ https://covidsicklecell.org/faq/

Additional Information

Contact General contact

Tools

    No tools defined


Access / Retrieve Data

Conditions of Use


Data Curation

Report a case https://redcap.mcw.edu/surveys/?s=JYNCNPPNJX

Data Access

Updates & Data https://covidsicklecell.org/updates-data/



Publications

No publications available


Related Standards

Reporting Guidelines

No guidelines defined

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined

Metrics

No metrics standards defined


Related Databases

No related databases defined


Implementing Policies

This record is not implemented by any policy.


Credit

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