SECURE-Sickle Cell Disease Registry
Abbreviation:Secure-SCD Registry
Homepage https://covidsicklecell.org/
Countries that developed this resource United States
Created in 2020
Taxonomic range
Knowledge Domains
Subjects
User-defined Tags
Awaiting DOI assignment.
Record added: Feb. 12, 2021, 9:36 a.m.
Record updated:
Feb. 12, 2021, 9:36 a.m. by The FAIRsharing Team.
Conditions of Use
Data Curation
Report a case | https://redcap.mcw.edu/surveys/?s=JYNCNPPNJX |
Data Access
Updates & Data | https://covidsicklecell.org/updates-data/ |
No publications available
Reporting Guidelines
No guidelines defined
Terminology Artifacts
No semantic standards defined
Models and Formats
No syntax standards defined
Identifier Schemas
No identifier schema standards defined
Metrics
No metrics standards defined
No related databases defined
This record is not implemented by any policy.
Record Maintainer
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Maintains
Medical College of Wisconsin (MCW), Wisconsin, USA (University)