databases > bsg-d001807

ready Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database

Abbreviation:SECURE-DERM

General Information
Given the interest in the emerging and evolving coronavirus (COVID-19) pandemic and the questions regarding how this will impact patients with atopic dermatitis (AD) or alopecia who are treated with or without systemic immunomodulating medication, we have created a number of secure, online, de-identified Personal Health Identifier (PHI) – free reporting registries and an anonymous patient reported survey.

Homepage https://www.secure-derm.com/

Countries that developed this resource Netherlands , Republic of Ireland , United Kingdom

Created in 2020





Awaiting DOI assignment.


Record added: Feb. 16, 2021, 9:26 a.m.
Record updated: Feb. 16, 2021, 9:26 a.m. by The FAIRsharing Team.



In Collections
COVID-19 Resources

Support

General

support email SECURE-AD Physician
support email SECURE-AD Patient
support email SECURE-Alopecia
twitter SECURE-AD
twitter SECURE-Alopecia

Additional Information

Contact General contact

Tools

    No tools defined


Access / Retrieve Data

Conditions of Use

Applies to: Data use

Data Curation

Report cases of COVID-19 in alopecia patients treated https://www.secure-derm.com/secure-alopecia/
Report cases of COVID-19 in AD patients https://www.secure-derm.com/secure-ad-physician/
Report experience with COVID-19 infection (for people with atopic dermatitis) https://www.secure-derm.com/secure-pad/

Data Access

Current data – SECURE-AD Physician Registry https://www.secure-derm.com/current-data-registry/
Current Data – SECURE-AD Patient Survey https://www.secure-derm.com/current-data-patient-survey/



Publications

Global reporting of cases of COVID-19 in psoriasis and atopic dermatitis: an opportunity to inform care during a pandemic.

Mahil SK,Yiu ZZN,Mason KJ,Dand N,Coker B,Wall D,Fletcher G,Bosma A,Capon F,Iversen L,Langan SM,Di Meglio P,Musters AH,Prieto-Merino D,Tsakok T,Warren RB,Flohr C,Spuls PI,Griffiths CEM,Barker J,Irvine AD,Smith CH
Br J Dermatol 2020

View Paper (PubMed) View Publication

International collaboration and rapid harmonization across dermatologic COVID-19 registries.

Freeman EE,McMahon DE,HruzaGJ,IrvineAD,SpulsPI,SmithCH,MahilSK,Castelo-SoccioL,CordoroKM,Lara-CorralesI,NaikHB,AlhusayenR,IngramJR,FeldmanSR,Balogh EA,Kappelman MD,Wall D,Meah N,Sinclair R,Beylot-Barry M,Fitzgerald M,French LE,Lim HW,Griffiths CEM,Flohr C
J Am Acad Dermatol 2020

View Paper (PubMed) View Publication

Related Standards

Reporting Guidelines

No guidelines defined

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined

Metrics

No metrics standards defined


Related Databases

No related databases defined


Implementing Policies

This record is not implemented by any policy.


Credit

Record Maintainer

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Funds

Grant Number(s)

  • RCN 20205667 (National and International Skin Registry Solutions (NISR), Dublin, Ireland )