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MS Global Data-Sharing Initiative

General Information

The Multiple Sclerosis International Federation (MSIF) and the Multiple Sclerosis Data Alliance (MSDA) have teamed up to form a Global Data Sharing Initiative to achieve insights on the effect of COVID-19 in people with MS as fast as possible, with the intent to steer clinical decision-making during the pandemic.

Homepage https://www.qmenta.com/covid19-patients_ms/

Countries that developed this resource Worldwide

Created in 2020

Taxonomic range

Homo sapiens

SARS-CoV-2

Knowledge Domains

Subjects

User-defined Tags

How to cite this record FAIRsharing.org: MS Global Data-Sharing Initiative; MS Global Data-Sharing Initiative; DOI: https://doi.org/10.25504/FAIRsharing.8F5DRF; Last edited: May 20, 2021, 1:26 p.m.; Last accessed: Jan 25 2022 11:15 a.m.

Record added: Feb. 16, 2021, 11:09 a.m.
Record updated: May 13, 2021, 5:57 p.m. by The FAIRsharing Team.

Show edit history

Edits to 'https://fairsharing.org/FAIRsharing.8F5DRF' by 'The FAIRsharing Team' at 17:57, 13 May 2021 (approved):

	'onto_disciplines' has been modified:
		Before:
			Clinical Studies
			Critical Care Medicine
			Health Science
			Infectious Disease Medicine
			Medical Virology
			Medicine
		After:
			Clinical Studies
			Critical Care Medicine
			Epidemiology
			Health Science
			Infectious Disease Medicine
			Medical Virology
			Medicine
		Added:
			Epidemiology
		Removed:

	'supportLinks' has been modified:
		Before:
			contact form|https://www.qmenta.com/covid19-patients_ms/
			online documentation|https://www.qmenta.com/global-data-sharing-initiative-launched-to-help-people-with-ms-during-covid-19-pandemic/
			online documentation|https://msdataalliance.com/covid-19/covid-19-and-ms-global-data-sharing-initiative/
			online documentation|https://www.msif.org/covid-19-ms-global-data-sharing-initiative/
		After:
			contact form|https://www.qmenta.com/covid19-patients_ms/
			email|angela.hooper@qmenta.com
			online documentation|https://msdataalliance.com/covid-19/covid-19-and-ms-global-data-sharing-initiative/
			online documentation|https://platform.qmenta.com/covid19_ms_patient
			online documentation|https://www.qmenta.com/covid19-patients_ms/
			online documentation|https://www.msif.org/covid-19-ms-global-data-sharing-initiative/
			online documentation|https://www.qmenta.com/global-data-sharing-initiative-launched-to-help-people-with-ms-during-covid-19-pandemic/
		Added:
			email|angela.hooper@qmenta.com
			online documentation|https://platform.qmenta.com/covid19_ms_patient
			online documentation|https://www.qmenta.com/covid19-patients_ms/
		Removed:

	'dataProcesses' has been modified:
		Before:
			Weekly results update, data access, https://www.qmenta.com/covid19-patients_ms/
			Report a case (for clinicians), data curation, https://www.qmenta.com/covid19-patients_ms/
			Report a case (for patients), data curation, https://platform.qmenta.com/covid19_ms_patient
		After:
			Weekly results update, data access, https://www.qmenta.com/covid19-patients_ms/
		Added:
		Removed:
			Report a case (for clinicians), data curation, https://www.qmenta.com/covid19-patients_ms/
			Report a case (for patients), data curation, https://platform.qmenta.com/covid19_ms_patient

	'onto_domains' has been modified:
		Before:
			Patient Care
			Report
			report
		After:
			Patient Care
			Report
			image
			report
		Added:
			image
		Removed:

Edits to 'https://fairsharing.org/FAIRsharing.8F5DRF' by 'The FAIRsharing Team' at 21:41, 28 Apr 2021 (approved):

	'standardsImplemented' has been modified:
		Before:
		After:
			COVID-19 Case Record Form
		Added:
			COVID-19 Case Record Form
		Removed:

In Collections

TDR COVID-19 Participant-level data sharing platforms & registries

COVID-19 Resources

Support

General

contact form	https://www.qmenta.com/covid19-patients_ ...
support email	Angela Hooper
online documentation	MS Data Alliance Online Documentation
online documentation	Report a case (for patients)
online documentation	Report a case (for clinicians)
online documentation	MS International Federation Online Docum ...
online documentation	https://www.qmenta.com/global-data-shari ...

Additional Information

Contact

Ariadna Torrens

Tools

No tools defined

Access / Retrieve Data

Conditions of Use

Applies to: Data use

Data Access

Weekly results update

https://www.qmenta.com/covid19-patients_ms/

Publications

No publications available

Related Standards

Reporting Guidelines

COVID-19 Case Record Form

Terminology Artifacts

No semantic standards defined

Models and Formats

No syntax standards defined

Identifier Schemas

No identifier schema standards defined

Metrics

No metrics standards defined

Related Databases

No related databases defined

Implementing Policies

This record is not implemented by any policy.

Credit

Record Maintainer

This record is in need of a maintainer. If you login, you'll be able to claim this record.

Maintains

Multiple Sclerosis (MS) Data Alliance (Consortium)
Multiple Sclerosis International Federation, London, UK (Charitable foundation)
QMENTA, Boston, MA, USA (Company)

MS Global Data-Sharing Initiative

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